On thurs me and Lewis went and signed up at the gym, we thought it would be a good idea as it gives us something to do everyday and I need to work on my core muscles as part of my treatment. Being good we decide to go the next day but when we get there it is closed due to weather conditions. There is only a light bit of snow and we thought this was a bit extreme. We decide to go to library to kill a bit of time but that is closed too and when we walk down the street all the shops and cafes are closing and it is only lunch time. When we hear the announcement that the subway is closing in an hour we realise maybe the snow may get heavier so we head back home. Sure enough that evening and throughout the night there are winds of over 70mph and thick thick snow forming on the ground. We watch the news after my mum rings to tell me boston is on the news back in the uk and hear the warning not to leave the house. The snow was and is still very pretty (it is now Monday). On Saturday Lewis and a neighbour spent two hrs shovelling the road into our close so people could get in and out. Yesterday everyone seemed to be outside shovelling outside their houses and the ploughs cleared the roads, all the now is piled about 5ft high to the sides not but its impressive how quickly people have cleared things up. We were lucky that we had no where to be at the weekend, I don't have my next appt till Wednesdat and that is to get my splint put in.
I will try and put a picture of the snow on here if I can over the next week.
Been in boston 2 wks now, it has been up n down. It was great meeting my doctor, I feel confident with my treatment n I tolerated the tests a lot better than I thought I would. He showed me how much my strength and movement will improve with my new splint by putting in a temporary mould he made for me n it was a big difference, that is now at the lab being made into my proper splint n I will collect it in a week. The down side was trying to find somewhere, we looked on every website, estate agents etc trying to find somewhere we could afford. Every ad we responded to at he beginning seemed to be just scams 'I have moved country and taken the key but drive past the outside of the house n if you like it you can sign a form n send me money, I will post you the keys' ermm no I don't think so. Thankfully we have now found somewhere which is in good location to my TMJ doctor and my chiropractor, we are sharing with two other people and it feels comforting that we can now become settled. The only issue now, which I guess is a very common issue is money, everything seems so much more expensive when you don't have much. The quote goes money doesn't make you happy, well it would sure make me happy, worrying about how can you afford to pay for treatment you have to have n paying rent etc doesn't make me happy. I just hope that this is my final treatment n I will finally be pain free n no longer tired. Fingers crossed x
We fly on 22/01/13 and everyone keeps asking me now 'are you excited?' 'are you nervous?' To be honest it keeps changing in the morning I may be really excited and can not wait to go and start my treatment and am really optimistic then by the afternoon I could be completely nervous and worrying about the money, being away from family, making Lewis (my husband) leave his business and friends etc. All the money we have saved and my family have saved and money that we don't even have is going towards MY treatment, it makes me feel guilty that I am using it all. I have the most amazing family and husband in the world, they have always been supportive and will do anything for me and remind me it is not my fault I need treatment but it still doesn't stop me from feeling guilty. I'm not worried about undergoing the treatment as having dealt with the pain for five years and undergoing other treatments before the potential pain I may experience while my jaw is going through adjustments doesn't bother me. Hopefully tomorrow I will feel happy and excited all day about going to America for the year.
I haven't written a blog before but I think what I am meant to do it just babble a bit about things and how I am doing, what is going on etc. I have said on the main page a bit about what my condition is etc. It started five years ago, I was eating a sandwich and I felt my jaw 'pop' and it locked shut, my face swelled up really bad, it was pretty freaky at the time. I went to the hospital and they told me that my jaw had dislocated, but it had gone back to the correct position again and I would need to take strong anti-inflammtory tablets and have a MRI scan to check my jaw. Once I had my MRI scan it was discovered my jaw discs were still dislocated. I was told to get a mouth guard made by my dentist and that should hopefully correct the situation. My dentist did not have time to see me and I was very lucky that I then decided to go to the White House Dental Clinic in Bushey Heath as Jonathan Schwarzmann was amazing and has been caring and helpful ever since. He fit me in straight away, made the guard as instructed and when the guard did not work he looked into finds TMJD specialist so I could have a splint made for my jaw and have it physically manipulated into the correct position. Unfortunately the next couple of treatments did not work, TMJD is a complicated disorder and there are different things that can cause it so it is hard to know what is the root of the problem and how to solve it. Jonathan has been very supportive and I am lucky to have him as my dentist, he went beyond what he needed to do to try and help me.
It is pretty frustrating when there is no definite solution to a condition and it can be lonely having it as people do not always get how tiring and stressful it is to be in constant pain. It was comforting when I found a TMJD group online where I could talk to other people in my situation. I have been on that for a couple of years now and we discuss what treatments we have tried, what foods are easy to eat, what symptoms we have, what helps the pain etc and anything else someone wants to talk about. This is how I found out about the treatment method in America and after emailing him for a couple of years and talking to his patients I have decided that it is worth the move to Boston, USA for a year to start the treatment.